Tuesday, January 31, 2012

Eden Update


I wanted to spend a few minutes giving an update on Eden. The surgery and recovery have gone better than we ever expected. It is an answer to so many prayers. Praise the LORD!


The actual surgery went very well. It took around 6 hours. Eden was a super patient. She was amazing at how well she did with her IV. They have a special IV room for kids. I was able to tell her what was about to happen, and she watched. I have found with Eden if I tell her what to expect that she does well. If you just spring something on her with out explaining it she freaks out. She’s a lot like her Momma in that we like to know what to expect. Eden never complained or cried while she got the IV. She spotted the princess stickers that she would get for having the IV. She was more interested in them than the IV. It also helped that we had great nurses. Once we returned to her room, she wanted the IV out, but was easily distracted.

As we waiting in the pre-op room, my focus was on keeping Eden calm. Thankfully we had a children’s care staffer that was there to help. She had an Ipad with Angry Birds and Cut the Rope to play. Eden was happily distracted while Larry and I spoke to the Anesthesiologist and the Doctor.

The hard part came when they gave Eden the meds to put her to sleep while Larry and I were still with her. It was hard to watch the medication take effect. I stayed positive and kept telling her I loved her over and over, then they rolled her out and I fell apart. I had reached my goal of not getting upset in front of her, for that I was glad. But knowing she was out of my hands, I just let myself have a good cry. Then I took a deep breath and started the beginning of the rest of the hard part, the waiting.

The waiting was made easier by some wonderful church members who came to be with us. It was so nice to have the love and support of so many people. It was a good distraction from the worry. We were also blessed with a fantastic staff from the hospital. They called every hour and half to give updates of Eden’s progress, which helped ease our fears.

Then the call came, they were finished and Dr. Fairbrother would be out to see us in a few minutes. It was OVER. I can’t tell you have relieved I was. It was like I had been holding my breath all day, and was finally able to exhale. It was over, she was ok. Thank you Jesus!

When Dr. Fairbrother came out, I asked if it would be OK to hug him and just remember saying “Thank you, thank you, it’s over!” Dr. Fairbrother told us she had done very well and that she would be able to run and play and do everything a normal child could do in a few weeks. WOW what an answer to prayer.

Then the next stage began, we we’re able to go to the post-op room and see her. She looked so little and still as she slept off the anesthesia. We were told we needed to keep her still for 4 hours as the arteries in her legs and neck began to clot. Have you ever tried to keep a 4 year old still for four hour? Yeah, it’s near impossible. I’m not going to lie, Eden waking up during the post operation time was really hard. She was in pain, she didn’t understanding what was going on, or why she felt so weird. She wanted to go home. When you child pleads with you to hold her and take her home, it will break your heart. There were lots of tears shed by both of us.

As the anesthesia cleared her system, she began to feel a little better and then became hungry. About the same time we had a knock on the door and a mother and daughter from Hailey’s Army came and brought us dinner. We’re not sure how they got our name. The lady didn’t know either. She said she just wanted to help. It was such a surprise and blessing. It was great that we didn’t have to leave in shifts or go to the cafeteria, all we needed was right there in Eden’s room.
With a little food in her system, Eden really began to perk up. And she just got better and better. By 7:00 the next morning she was back to her old self, playfully shy and sweet, wanting her baby dolls and leap frog.

As we left the hospital we entered the last hard phase, keeping her inactive for 5 days. That was a tough challenge too. Keeping her from playing outside and wrestling her brother, some of her favorite activities, was hard. We are so very thankful Larry’s parents who helped during those days. I don’t know how we would have gotten through those days without their help.

We were also blessed by our church family and friends. We received so many phone calls, texts, Facebook messages, meals and visits. We were overwhelmed with love and prayers. There were so many people praying for us and we felt the power of those prayers during all of the phases of this trial. I’m not sure how we would have come through this without the support of these wonderful people. We felt truly deeply loved by our family, friends and community.

It’s been two weeks now and Eden is doing fantastic. Her incisions and bruises have healed. She takes a baby aspirin every day, but should be finished with those in a few more weeks. Larry and I agreed last night we have seen an increase in her energy level. Oh Boy, More energy!

Saturday, January 14, 2012

Well, Bless Your Heart."

"Well, bless your heart.” I wish I had a dollar for all the times I’ve heard that lately. We would be rich. Not Bill Gates rich, but you get the point. I often have my three children with me where ever I go, the grocery store, church, Wal-mart, the park, the library. You know, where ever life in general takes us. People often ask how old they are and I tell them, 4, 2 and new. Then It comes, “Well, Bless your heart!” or my 2nd favorite, “Well you must have your hands full.”


Some people, like my wonderful Mother in law, bless my heart and it is a sweet term of endearment. It conveys care, concern, a level of compassion that makes you feel as if the individual blessing you cares for you and your situation. But most people bless my heart with much less enthusiasm for my young family. Often the bless you heart is the intro to how they feel about me having so many children so close in age. Like it is their kind way to pronounce judgment on my young and growing family.

I am amazed at how freely people joke around asking if we know how we got pregnant, or ask about birth control. To which I would love to reply something sarcastic right back, but in remembering that I’m a pastor’s wife and a reflection of Christ. I try to hold my tongue. A lady working in a department store told me three young children were too many. And I had another lady tell me before Christmas, She sure didn’t envy me. She then went on to tell me how she hated when her children were young.

Wow! I don’t want people to envy me, but I sure don’t want my children, (who were with me) to get the impression that this lady’s attitude and all the others are biblical. I want them to understand that children are a blessing from the Lord; That Larry and I are blessed to have them as our children. When people bless my heart I try to say I am indeed blessed. That I love my children, that I would rather be their momma than anything else in the world.

And the crazy thing is we only have three children! I wonder when it was that three children became too many? It was only two generations ago that large families were the norm. There are lots of families that I know of in my grandparents generations that had 8, 10 even 12 children. I wonder if those Mothers had their hearts blessed all the time.

If God chooses to bless us with more children, Larry and I would be thrilled. But He’ll need to give me thicker skin because I can only imagine how many more comments we will receive if we have 4 children. I should make a shirt that says, Yes, They are all mine, and I home school too! Just to get people really worked up!

Thursday, January 12, 2012

Sitting Pretty/ 5 month update

Titus continues to amaze me with his fast growth and strength. He can now sit up by himself and is army crawling around the room. Gone are the days when I could leave him on a blanket and he be there when I return. He is weighing in at 18 lbs 10.5 oz., 26 inches tall. and wearing 9 month clothes. We grow big boys in the Gilbreath House!  
 I see a big boy car seat in out near future because He is almost to long and heavy to keep in his carrier car seat.  He is a smiling happy baby that loves to be held and is super cute when sucking his thumb. Thankfully, he only fusses when he's hungry or sleepy and he is also very ticklish. Sleeping through the night is still a goal, though I am trying to enjoy this sweet time with him.  Soon he'll be running aroun, and eating people food. The next thing I'll know he will be in college! 



My Little Reader

My children love to read. It brings me great joy that they look forward to us reading together and that they enjoy looking through books when they have free time. Josiah has a set of Winnie the Pooh books that has caught his interest.

The other day I told the kids we needed to go outside to enjoy the warm weather. I figured running and playing would ensue. Josiah surprised me by taking his Winnie the Pooh book up on the trampoline and reading it instead of jumping. My sweet little reader wanted to finish the story before he played.





Wednesday, January 11, 2012

Eden's Heart Surgery

Today while the boys took their naps, Larry and I talked to Eden about her upcoming surgery. We began by giving her the princess pajamas that her Grandma and Granddaddy sent for the time she's in the hospital. She was thrilled! Then I explained how she would be wearing these special pajamas while she was in the hospital. I was surprised I stayed as calm as I did as I explained everything to her. That was a God thing, because I've been anxious about the whole things for the past few days.

Eden's first question, "Do I get to ride on a helicopter?" Her cardiologist's office is next to the landing pad for the helicopters. Then she asked. " am I going to get a baby?" The last time we went to the hospital, Momma had Titus. Then she said, "And PawPaw was just in the hospital to get better." It's funny the things that run through the mind of a four year old. After all was discussed and questions answered she was ready to pack for her adventure.

Eden was 2 months old she was diagnosed with Supraventricular Tachycardia (SVT). We were told that if she didn’t grow out of it that she would have to have surgery. Sadly, she has not grown out of it and the surgery is scheduled for Tuesday morning at 8:30am. You can find more information about SVT here and Eden's story here. Essentially, Eden’s heart races for no reason. The last time she had an episode that was recorded her heart was beating 278 beats a minute. That is a dangerously high level. So she will undergo surgery to ablate (or destroy) the tissue that is causing her heart to race.

We are thankful to be surrounded with a community of faith. We believe in the power of pray and ask that you and your families please join us and pray for the following specifics:

Pray that Eden’s surgery would go well and have no complications. The surgery will take between 6-8 hours. Please pray for her Cardiologist, Dr. David Fairbrother, and all the other doctors and nurses that will be caring for Eden. Pray her recovery would be quick and as painless as possible. Pray that she would do well with the anesthesia. Pray that she will not be fearful. Pray that she will rest well the days afterwards when she need to be still so that healing can take place in her heart and arteries.

Please pray for Titus. We have been trying to bottle feed him for the time that I need to be with Eden. He has not done well with taking a bottle. Larry's Mom and Dad are planning to stay across the street at a hotel so I can go back and forth to feed him. However, there will be times I need to be with Eden and he will need a bottle. Please pray he will eat well and that he will return to nursing easily when we return home. Please also pray he would start sleeping through the night. It would be much easier if I didn’t have to go back and forth from the hospital to the hotel in the middle of the night.

Pray for Josiah. Larry’s parents are going to keep him and will do an excellent job distracting him. We  have to have restful days after the surgery. So no wrestling or rough playing between Eden and Josiah. This is a favorite pastime for them. Keeping them separate will be hard. Pray for wisdom and understanding there.

Pray for Larry and me as we try to make decisions to best serve our family. I am struggling with a lot of anxiety. I normally have all three of my children with me all day. Having us split up in different places is hard for me to handle. I know all three children will be well cared for, it just can’t be by me, and that’s difficult. Plus the worry of a mother for her child is heavy.

This is a trail that the Lord is using to grow our faith. It is hard, and I am weak when it comes to the health and well being of my children. BUT the God of the universe who created Eden, Josiah and Titus knows this situation and it is in His control. Please pray that we will bring Him glory as we face fears, hardships and health issues.

Tuesday, January 3, 2012

Titus Video

PawPaw and Yaya, we hope this will bring you a smile to your day. We love you both so much and hope you feel better soon. Pawpaw, Titus will share some cereal when you can eat again. He can show you how to chow down too! :)



video

Monday, January 2, 2012

First food

My big boy had his first introduction to baby cereal. To say he likes to eat is an understatement! This kids LOVES to eat. Last week he weighed in at 18 lbs!


 My thumb is so good, what could beat that?

 Hmmmm, let me see that spoon.
.
 I could do this all by myself.
Can you put some more of that food stuff on this green thing, I can do the rest!

That was Good! What's next? :)